spina bifida and hydrocephalus

Associazione Spina Bifida and Hydrocephalus Niguarda - Marco Zuccollo

What is ASBIN, who works there, what activities it organizes and how it carries out its projects. Marco Zuccollo, President of the Spina Bifida and Hydrocephalus Association of the Niguarda Hospital in Milan explains it.
ASBIN, history, objectives and projects

Try to make these guys' lives better and try to give them the best they can get according to their possibilities because the pathology is so varied that every boy has his needs.

(Read also: Spina Bifida, what is useful to know)

The Association Spina Bifida Idrocefalo Niguarda is an association that was born here in Milan in 1989 and that aims to support the Spina Bifida Center which welcomes about 400 boys from 0 to 18 affected by this pathology. The association aims to integrate some specialized figures at the health level to make the Spina Bifida multidisciplinary Center.

There are figures like a nurse, a pediatrician, two psychologists who are not part of national health care and therefore the Center also supports the expenses.

We organize conferences at national and regional level, we organize fundraisers and meetings during the weekends for those families who need to ask questions and receive answers, to confront each other to find an answer to those needs and those daily problems to which they meeting with their children.

At the Spinal Unit and the Spina Bifida Center, in addition to medical visits, we also offer children psychological support. Moreover, together with the other regional associations that exist in almost all of Italy, we try to organize summer camps that are designed to promote the autonomy of these children. For a couple of years now we have also organized snow weekends to teach those who want to ski.